On 13th July 2023, OncoEng held a patient day for our patient partners and researchers from across the OncoEng Project. This day was an excellent opportunity for co-creation of research ideas, and modification of existing research pathways to match the lived experience of metastatic bone disease (MBD). The day was well received by both patient partners and researchers, with the researchers gaining a very personal insight into the diagnosis and treatment of MBD.
The day fostered a co-creation environment for brainstorming and refining research pathways, ensuring they align closely with the actual experiences of those battling Metastatic Bone Disease. Patient partners and researchers exchanged insights, deepening researchers’ understanding of MBD’s practical challenges while empowering patients through active participation.
Acknowledgements
- Patient Partners: A heartfelt thank you to Julie Sutherland, Ian Sutherland, Karen Brennan, Carole Pollard, Victoria Groves, Katie Hinken, Rachel Clayton for their invaluable contributions.
- Leeds Teaching Hospital Trust Recognition: Special thanks to Dr. Hanif Ismail, our Patient and Public Involvement Manager, for his pivotal role in the event’s success.
- METUPUK for assisting to gather patients to be involved in the event to give their views living as patients with spine metastases and the impact on their lives, patients welcome research to help with their disease.
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